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NDIS  News.. by JanellePARTICIPANT FIRST ENGAGEMENT – What is?  I’ve been a member of the Participant First Engagement group since its inception, it’s a fantastic way to be involved with changes.  Through this group I’ve been a member of their testing panel which involves testing the...

When I was diagnosed with Systemic Scleroderma in 2010, I had no idea what that diagnosis meant. What it meant for me, let alone what it would mean for my family, my career or in fact my world. Like everyone else, the first thing I...

Scleroderma NSW is actively involved in fundraising, supporting members, providing information and reaching out to people when they may be most vulnerable. Our recent World Scleroderma Day Seminar was a great success; members, families and supportive friends attended this informative event, on a cold winter’s...