News

Scleroderma @ ResearchFriends, an online platform connecting our community with cutting-edge research. Our launch webinar brings together top experts to discuss the latest developments and how you can actively shape future research. ...

The University of Melbourne are examining the role of palliative care in the management of scleroderma, and a major part of this project is to explore the needs of people with scleroderma and their carers or support persons. ...

Scleroderma @ ResearchFriends, an online platform connecting our community with cutting-edge research. Our launch webinar brings together top experts to discuss the latest developments and how you can actively shape future research. ...

NDIS  News.. by JanellePARTICIPANT FIRST ENGAGEMENT – What is?  I’ve been a member of the Participant First Engagement group since its inception, it’s a fantastic way to be involved with changes.  Through this group I’ve been a member of their testing panel which involves testing the...

When I was diagnosed with Systemic Scleroderma in 2010, I had no idea what that diagnosis meant. What it meant for me, let alone what it would mean for my family, my career or in fact my world. Like everyone else, the first thing I...