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Scleroderma Research

2013 Scleroderma Australia Fellowship Grant

The 2013 Scleroderma Australia Fellowship Grant has been awarded to the Australian Scleroderma Interest Group.

They have chosen Dr Tien Tay who will be undertaking the following project:

This project will be describing and quantifying damage in systemic sclerosis, using the damage descriptors developed by Mandy Nikpour (tentatively referred to as the 'ASIG Damage Index' (ASIGDI)), measuring the accrual of damage over time and assessing damage as a predictor of outcome. There is also scope to 'validate' our 'ASIG Damage Index' using the cohort established by the Canadian Scleroderma Research Group with whom ASIG has been developing a collaboration.

Scleroderma Survey

We are still in the process of recruiting informal caregivers to persons with Scleroderma to participate in our informal Caregiver's of People Living with Scleroderma Survey.

We are hoping to obtain additional responses from eligible participants before closing this survey, and if possible I'm hoping to get
your help one last time promoting this survey! Please see the recruitment advertisement link below.

Survey Recruitment Advertisement Informal Caregivers

Australian Scleroderma Interest Group

The Australian Scleroderma Interest Group (ASIG) undertakes research projects into scleroderma.

ASIG would like to thank patients and their families who have generously donated to the ASIG research program.

Donations to the ASIG research program are used to:

  • Fund blood sample research which we hope will help to explain why some people develop the serious complications associated with scleroderma - $30 would cover the cost of one sample
  • Maintain the national database, a vital part of rare disease research - $250 would provide the hardware to link one researcher to the online database
  • Contribute to a scholarship for a PhD student - Rheumatology Consultants or Registrars who choose a career in research undertake a three year research degree. ASIG is committed to sponsoring one student per year who is interested in focusing on scleroderma and contributing to a better understanding of this rare disease.

Tax deductible donations to Australian Scleroderma Interest Group can be made to:
St Vincent's Foundation
BSB: 082 057
Account no.: 147 436 626
Reference: scleroderma


Australian Scleroderma Interest Group Newsletters