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Scleroderma Research

The cause of scleroderma is not known. It is hoped that research into the cause of scleroderma might lead to new advances in treatment and intervention. Scleroderma Australia aims to encourage and stimulate new ideas in the search for the cause and treatment of scleroderma through its research program which will be funded by member states, corporate and individual sponsors.

Scleroderma Survey

We are still in the process of recruiting informal caregivers to persons with Scleroderma to participate in our informal Caregiver's of People Living with Scleroderma Survey.

We are hoping to obtain additional responses from eligible participants before closing this survey, and if possible I'm hoping to get
your help one last time promoting this survey! Please see the recruitment advertisement link below.

Survey Recruitment Advertisement Informal Caregivers

Australian Scleroderma Interest Group

The Australian Scleroderma Interest Group (ASIG) undertakes research projects into scleroderma.

ASIG would like to thank patients and their families who have generously donated to the ASIG research program.

Donations to the ASIG research program are used to:

  • Fund blood sample research which we hope will help to explain why some people develop the serious complications associated with scleroderma - $30 would cover the cost of one sample
  • Maintain the national database, a vital part of rare disease research - $250 would provide the hardware to link one researcher to the online database
  • Contribute to a scholarship for a PhD student - Rheumatology Consultants or Registrars who choose a career in research undertake a three year research degree. ASIG is committed to sponsoring one student per year who is interested in focusing on scleroderma and contributing to a better understanding of this rare disease.

Donations to ASIG cannot be claimed as tax deductions.

Donate

Australian Scleroderma Interest Group Newsletters

  • Newsletters

    Scleroderma Connections is the newsletter of the Australia Scleroderma Interest Group (ASIG). ASIG publishes Scleroderma Connections to keep patients and their families informed of the latest news from ASIG; a profile of screening centres; current studies; and some practical advice from experts on how to manage common problems arising in scleroderma.