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Publications

As part of our educational role, Scleroderma Australia produce a number of informative brochures which explain various aspect of scleroderma.

These brochures cover a wide range of issues and are available free to download.

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  • Understanding and Managing Scleroderma

    This booklet is intended to help people with Scleroderma, their families, and others interested in Scleroderma. It answers some of the questions most frequently asked about Scleroderma.

    Download

  • Eating Well

    Advice for those with nutritional concerns relating to scleroderma.

    The brochure includes sections on: food preparation, physical effects of scleroderma,calcium intake, and maintaining weight and avoiding malnutrition.

    Download

  • More than skin deep

    June 29 is World Scleroderma Day.

    World Scleroderma Day was created to raise awareness of what it means to have this disabling disease. June 29 is a day to recognise the bravery of those who live with this disease and to demand equal treatment and equal care for people with scleroderma.

    Download

  • Oral and Dental

    Because connective tissue occurs throughout the whole body, this disease affects many and various organs and can produce a wide range of symptoms, including oral and dental problems. This brochure discusses these problems and steps to minimise oral symptoms and damage

    Download

  • Travelling

    This brochure aims to make your plans and travel as stress-free as possible, and also as rewarding and exciting as it should be.

    Download

  • Hospital Checklist

    Often when a person with scleroderma is hospitalised for surgery or treatment of another condition, they find that the nursing staff may have limited knowledge of scleroderma. The following care plan was developed for a person with scleroderma to take to hospital and give to the nursing staff on admission.

    Download

  • Hospital Checklist Form

    Often when a person with scleroderma is hospitalised for surgery or treatment of another condition, they find that the nursing staff may have limited knowledge of scleroderma. The following care plan was developed for a person with scleroderma to take to hospital and give to the nursing staff on admission.

    Download

  • Bladder and Bowel Problems

    People with Scleroderma may experience difficulties with their bladder or bowel.

    This brochure provides information about why these problems may occur and advice on how you can get help.

    Download

  • Blood Taking Tips

    Tips to help you undergo blood tests with the minimum of distress and assist the collector to understand your special needs.

    Download