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Family braves 500,000 steps for Scleroderma

Sclero Fam
 

A FAMILY will strap on their joggers and walk more than 450km from Mt Annan to central NSW this year to raise awareness and funds for a largely overlooked auto-immune disease called scleroderma.

Mt Annan’s Trish Noack was diagnosed with the disease, which results in the hardening of a person’s skin, last year. In severe cases, such as in Mrs Noack’s, it also affects the function of internal organs.

Mrs Noack’s husband Stephen along with her daughter and son-in law, Tamara and Andrew Kennedy, will make the more than 500,000-step journey from Mt Annan to the town of Ariah Park from May 26-June 7.

Mrs Noack, who is undergoing treatment, has lost mobility as a result of the disease, forcing everyday tasks such as brushing her teeth to be extremely difficult.

Sclero map

But Mrs Kennedy said family, friends and even strangers had been extremely supportive.

“People with scleroderma have gotten in touch with us and said they often feel like they’re battling it alone,” she said.

“With this we’re able to spread awareness and fight this battle together.”

More than $3000 has been raised so far. The family is aiming to raise $20,000 in total.

“To everyone who has donated, I’d like to say a big thank you. You’ve really lifted my mum’s spirits,” Mrs Kennedy said.

“There is no cure and so it’s so important that we help Scleroderma Australia with their research.”

To donate, visit give.everydayhero.com/au/500-000-steps-for-scleroderma.